Sunday, September 28, 2008

Where is Gracie's blood?

So I probably should have posted on Friday when the blood went missing but I guess since we still do not have blood counts today is OK. We went down to the lab on Thursday for Gracie to have her blood work done. The order is for results to be given to the oncologist STAT because it determines if could effect Gracie's treatment plan. So the oncologist expects the results that afternoon as soon as they are available. We also get the results from our doctor to know if there is anything that we have to do different. The lab is 30 minutes away and causes Gracie quite a bit of discomfort (no lab seems to want to do finger pricks as the Houston medical team suggests, so all blood is drawn from a vein in her arm).
Anyway, on late Friday morning Stephanie has not heard from anyone about the blood counts so she calls the Nurse Practitioner in Houston. They tell us that they have not seen the results but will track them down. A few minutes later they call back to say that the labs will not release any information and Stephanie will have to track it down. So Stephanie calls the lab where it was drawn and they assure her that the blood has been sent away. Stephanie calls the lab that processes the blood and at first they do not know where it is. Then they find the blood but no mention of a STAT order is with it so they had not rushed it. They say they will but neither us nor the medical team in Houston has the results as of today (Sunday). So we really do not know if her levels are high enough that we do not need blood work tomorrow or if we should be concerned about other problems.
It is obvious that her platelet counts are lower than usual as she bruises very easily. She loves to run and play with her sisters (and her dad), so ends up falling or crashing often. So her legs and arms have lots of bruises. Hopefully tomorrow will be a "free" day and we will not need to go to the lab again.
We are finding that Gracie is losing more and more hair when it is brushed. You cannot tell from looking at her but it is obvious when you are brushing that more is coming out. The bulk of her hair loss is likely to happen after her second round of chemotherapy. It is sad to think of her losing her hair but it is good to see that the drugs are doing their job. So we will just keep cheering the chemo on and praying for it to win the fight against her cancer!
As always, the love and concern of our many friends has been incredible. We wish you all the very choicest blessings.

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