For Gracie and her mom, today was a lot of waiting around in the cancer center, going for walks, talking with some nurses and doctors, watching TV and playing with toys. We found out that the future treatments will start on Thursdays with an EUA and injections of Carboplatin into the area around the eye. Then Fridays and Saturdays will include IV injection of carboplatin, vincristine and etoposide for stretches of about 2 to 3 hours (the drugs are administered in succession). After the Saturday treatment Gracie can come home. In some ways that is a really nice schedule and makes the work week a little less hectic. This first treatment did not include the EUA so the treatments that are going on as I type are the final ones and Gracie will be coming home tomorrow morning! I am excited that they will be beating the hurricane home and even more excited that Gracie and her mom will be home again! I have missed them so much, even though I have talked to them frequently.
Gracie has been her normal perky self. Her mom told me she had to work to keep her from jumping from the couch to the bed in the hospital room. Gracie has loved playing with the cars on the unit (see the picture above) and talking with anyone that will listen.
On a bit of a scary note the nurses told Gracie's mom that they are concerned that Gracie may have had a reaction to one of the drugs last night. As they reviewed her charts they noted some serious coughing near the end of the treatments (this is a potential indication of an anaphylactic reaction). So as a precaution they have the medical staff alerted on the unit and they are going to monitor her very closely. We pray for her continued safety during the treatments and that our cheerful little girl will make it through the night without further complications.
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