Friday, July 29, 2011

Gracie Pics




Gracie has been doing marvelously. She is always her cheerful self and has loved participating in swim team throughout the first half of the summer. Just the other day, Stephanie took pictures of the kids at a nearby park. These are a few pictures from that photo shoot.

I am grateful for Gracie's health and happiness. She is such a joy and blessing in our lives. I have been blessed by the prayers and faith of many friends and family. I was reminded of all the miracles we have seen as I watched Gracie tell a friend of mine how she needs to protect her real eye with glasses because if she had two fake eyes she would not be able to see. There was no sadness or worry in her voice, she was smiling the whole time and just wanted to explain the facts. This friend has a 15 month old son, Chase, that was recently diagnosed with severe Hypertrophic Obstructive Cardiomyopathy. It is a disease of the heart that is not common in children but can cause sudden cardiac death. They are going through many of the same emotions that we did in our journey with retinoblastoma. I admire their faith and positive outlook through their current struggle. From experience I know that even though you try to have hope and exercise faith, some days are still hard when you don't know what the future holds for your child. My family and I are praying for Chase and his family and hoping for the very best.

You can read more about Chase and his condition here- http://littlechasesbigheart.blogspot.com/

Wednesday, July 27, 2011

Rolling down the Highway

Gracie's last EUA was on May 20, 2011. I took her myself as Stephanie was not feeling well. All is well and she enjoyed her time seeing all her friends at the Children's Hospital. On the way back, Gracie was rather quiet in the backseat. When I plugged my phone into the computer I found out why. I have made a quick movie out of Gracie's picture-taking. I deleted about 40 pictures even before deciding to make this movie. I didn't include the 3 and a half minute video she made in the car either as I was getting sick watching the world spin around and around. Gracie is so crazy. Enjoy!


video

Sunday, January 23, 2011

Gracie's gingerbread man

We made gingerbread houses over the Christmas break. Gracie was insistent that she make a gingerbread girl by herself. So she made this girl with a green fake eye. I thought it was pretty funny. (Try to ignore that Gracie's hair was never done the day we took the pictures. It was Christmas break you know.)