Can you show a picture of the opaqueness in the eye?
No we actually cannot because we do not have one. I spent some time today going through hundreds and hundreds of Gracie's pictures (thanks to the miracles of digital photography) over the past 6 months. I could not find one where there opaque mass is visible. This may be because the visceral seeds were new when my wife first saw them, or it may simply be the fact that they are really hard to see. Even now unless her eyes are dilated and the light hits them just right it is difficult to see the any evidence of the cancer. Most of the pictures just show the big beautiful eyes that we know and love with Gracie. There were two pictures in the last month and a half that looked a bit like the opaqueness that we have seen but I think it was more the reflection from the area around the pupil and not from the cancerous mass in the eye.
Is it preferable for Gracie to be asleep during the treatment?
Well, yesterday (rather early this morning) it was. However, the biggest reason they were done then is that the consent forms were misplaced and then waiting on delays in the pharmacy. Ideally I think they would have administered the medication within a couple hours of Gracie's admittance to the unit (which would have been late afternoon yesterday). She then would have played games or watched movies through the treatments. Sleeping through the treatments is probably pretty nice though.
Is it typical to feel nauseous or unwell during administration or does that tend to come later?
I think the short answer to this is that they expect Gracie to feel nauseous both during and after the therapy and so were just trying to minimize that with the drugs before the chemotherapy.
Do the injections of carboplatin happen under a general anesthetic at some point?
Yes, these injections will likely occur on the first morning of the next round(s) of chemotherapy. An EUA is scheduled each cycle to see how effective the chemotherapy has been over the course of the 28 days and while she is still under anesthesia the carboplatin will be injected around the eye.
Well, yesterday (rather early this morning) it was. However, the biggest reason they were done then is that the consent forms were misplaced and then waiting on delays in the pharmacy. Ideally I think they would have administered the medication within a couple hours of Gracie's admittance to the unit (which would have been late afternoon yesterday). She then would have played games or watched movies through the treatments. Sleeping through the treatments is probably pretty nice though.
Is it typical to feel nauseous or unwell during administration or does that tend to come later?
I think the short answer to this is that they expect Gracie to feel nauseous both during and after the therapy and so were just trying to minimize that with the drugs before the chemotherapy.
Do the injections of carboplatin happen under a general anesthetic at some point?
Yes, these injections will likely occur on the first morning of the next round(s) of chemotherapy. An EUA is scheduled each cycle to see how effective the chemotherapy has been over the course of the 28 days and while she is still under anesthesia the carboplatin will be injected around the eye.
1 comment:
Hey James - I just found out about your blog tonight. We've been praying for Gracie ever since we found out about 2 weeks ago. The kids pray every night for her. We had her name put on the prayer roll in Edmonton, and also went to the temple on Saturday, with Gracie specifically in mind. It is so great that you are doing this. We've been wondering on a daily basis how things are going, but didn't want to call, as we know you guys are probably feeling very overwhelmed right now. Just wanted you to know that we love you guys, and are praying for Gracie. Also, we didn't have any idea that there was anything wrong with your baby. We'll keep him in our prayers as well.
Lindsay and Jared
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