Last night went extremely well. Stephanie was up with Gracie twice after her chemo was completed at about 10PM. Gracie seemed to sleep well and has not had any pain killing medication since yesterday morning. Gracie and I spent a large chunk of yesterday afternoon painting and playing in the games room. She was happy to be up and literally bounced back to her room at 6PM to start receiving fluids to prepare for chemotherapy at 8PM.
The only major hiccup today was that the needle into her port-a-cath got clogged and so they had to reinsert her port. This is the first time that we have let them access the port prior to the EUA procedure. Gracie hates it when it needs to be accessed so we thought that it would be better when she was asleep already, however, in the past, the nurses in the operating room did not seem terribly confident working with the port so we had just waited until the cancer unit to access the port. It is probably just a coincidence that the port got clogged the first time that an OR nurse accessed it but it was still frustrating to see that it had to be reaccessed.
It is just after 10:30AM and the doctor just came in to do the final assessment before we can be discharged, so hopefully we will be on our way shortly. Gracie is really excited about everything right now and convinced the volunteers to give her all of their orange markers. She told them it was her favorite color. They only had two packages with orange in them. When they asked which set she wanted she told them both. Now she is coloring and telling the doctor about Disneyworld.
It is great to see her so happy!
Thanks again for your love and support!
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1 comment:
We're really glad that this round has gone so much better for Gracie and her parents. We hope she stays feeling as well as possible and it's great that you'll soon be home. We love you!
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